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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment.

The trial will only include patients who are under the age of 18.

When these young people are considered for the trial their parents will be given sufficient written information etc to ensure they can make an informed choice before they decide if they want to participate. (If the patient is 16 to 18 they will also be given the information themselves).

As a charity, we support the trial and are co-applicants on the basis that, at the present time there is no specific treatment known to help reduce the severity that some sufferers of Haemolytic Uraemic Syndrome (HUS) can experience. We do not know whether or not it will work but are encouraged that this drug has been shown to be successful when used for a similar condition known as aHUS.

We appreciate that this is a difficult decision for parents to make when their child is ill, but we wish them well in whatever choice they make.

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Tesco fined £7.65 Million but the FSA keep quite

23rd May 2021

Tesco fined £7.56 Million but the FSA keep quiet! Why is it that the Food Standard Agency (FSA) appear to be keeping quiet on the public front, when supermarkets either breach the law or fail to meet targets they have set for... ...read on

Closure of HUSH

14th January 2018

Unfortunately, we are sad to announce that after 20 years in existence, HUSH has ceased. We would like to thank everyone for their help and support.... ...read on

The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment. The trial will only include patients who are under the age of 18. ... ...read on

Don’t risk lives keep meat inspections independent petition reaches 100,000 signatures.

23rd October 2017

The above petition by HUSH and in conjunction with UNISON has now reached 100,000 signatures. The aim of the petition is to let the Food Standards Agency know about the concerns the public has in relation to meat hygiene. Below are two recent examples of meat hygiene ... ...read on

Abattoir cuts, despite 25% failing to meet hygiene standards.

28th February 2017

Research carried out by the Observer newspaper and the Bureau of investigation published earlier this month, reveals that in 323 abattoirs audited in England, Wales and Northern Ireland by the Food Standards Agency (FSA), 86 of them failed to meet the key benchmark te... ...read on

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E.coli O157 & Haemolytic Uraemic Syndrome

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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.