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E.coli O157 & Haemolytic Uraemic Syndrome


aHUS support group calls for backing

18th September 2011

A support group for sufferers of the rare atypical haemolytic uremic syndrome (aHUS), are calling on the Government to commission a national specialised service for treatment, to fund treatment with complement inhibitors such as eculizumab, and ensure that these services and therapies are available to all patients who need them.

Eculizamab has now been proven to stop the blood complement process which causes the damage to the kidneys and other organs following an episode of HUS. This gives hope to those aHUS patients on dialysis because they will have the opportunity to have a kidney transplant previously denied them because their aHUS condition would recur and destroy the kidney graft. Also it means that future sufferers can be treated with eculizamab before HUS causes the more serious outcomes.

An e-petition has been created at http://epetitions.direct.gov.uk/petitions/16053 and it would be of enormous help to aHUS patients if as many of you would sign by clicking on the link.

If you want to know more about aHUS a website has been developed at www.aHUS.org.uk




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18th September 2011

A support group for sufferers of the rare atypical haemolytic uremic syndrome (aHUS), are calling on the Government to commission a national specialised service for treatment, to fund treatment with complement inhibitors such as eculizumab, and ensure that these servi... ...read on
30th August 2011

An European Union (EU) delegation is on its way back to Europe after a visit to Egypt to investigate the seeds blamed for an E.coli outbreak over the summer. It intends reporting within ten days, to allow discussion on lifting the current ban on the import of Egyptian... ...read on
30th August 2011

Two more people have been diagnosed with E. coli O157 at a hospital day nursery in Middlesbrough - bringing the total number of cases to six. A toddler who attended the James Cook University Hospital nursery is being treated in hos... ...read on
30th August 2011

The latest annual report from the Drinking Water Quality Regulator (DWQR) shows that water from public supplies in Scotland is cleaner than it has ever been, but the quality from private sources is causing concern. 99.83% of 155,302 tests from taps in homes met regulatory standards in 2010. ... ...read on
30th August 2011

Public Health Wales has been notified of one further case of E.coli O157 in an individual who had been under investigation, bringing the total number of cases identified so far to nine. No cases are in hospital. A further nine people are under investigation. ... ...read on
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