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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment.

The trial will only include patients who are under the age of 18.

When these young people are considered for the trial their parents will be given sufficient written information etc to ensure they can make an informed choice before they decide if they want to participate. (If the patient is 16 to 18 they will also be given the information themselves).

As a charity, we support the trial and are co-applicants on the basis that, at the present time there is no specific treatment known to help reduce the severity that some sufferers of Haemolytic Uraemic Syndrome (HUS) can experience. We do not know whether or not it will work but are encouraged that this drug has been shown to be successful when used for a similar condition known as aHUS.

We appreciate that this is a difficult decision for parents to make when their child is ill, but we wish them well in whatever choice they make.

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Don't risk lives - Keep meat inspections independent

30th July 2021

The Don't risk lives - Keep meat inspections independent Petition to the Food Standards Agency (FSA) has now reached at least 219,870. Thank you so much to everyone who has signed this. ... ...read on

New website under construction

23rd May 2021

Please bear with us whilst we construct our new website, which should be up and running fully in the next few months... ...read on

Tesco fined £7.65 Million but the FSA keep quite

23rd May 2021

Tesco fined £7.56 Million but the FSA keep quiet! Why is it that the Food Standard Agency (FSA) appear to be keeping quiet on the public front, when supermarkets either breach the law or fail to meet targets they have set for... ...read on

Closure of HUSH

14th January 2018

Unfortunately, we are sad to announce that after 20 years in existence, HUSH has ceased. We would like to thank everyone for their help and support.... ...read on

The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment. The trial will only include patients who are under the age of 18. ... ...read on

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E.coli O157 & Haemolytic Uraemic Syndrome

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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.