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The drugs trial for Eculizumab [ECUSTEC} started in July of this year.

29th October 2017

The drugs trial for Eculizumab known as [ECUSTEC} started in July of this year. Six of the twelve participating hospitals are now open to recruitment.

The trial will only include patients who are under the age of 18.

When these young people are considered for the trial their parents will be given sufficient written information etc to ensure they can make an informed choice before they decide if they want to participate. (If the patient is 16 to 18 they will also be given the information themselves).

As a charity, we support the trial and are co-applicants on the basis that, at the present time there is no specific treatment known to help reduce the severity that some sufferers of Haemolytic Uraemic Syndrome (HUS) can experience. We do not know whether or not it will work but are encouraged that this drug has been shown to be successful when used for a similar condition known as aHUS.

We appreciate that this is a difficult decision for parents to make when their child is ill, but we wish them well in whatever choice they make.

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56 cases of HUS in French outbreak.

16th May 2022

French authorities indicate that there are now 56 cases of Haemolytic Uraemic Syndrome (HUS) linked the outbreak of Nestlé Buitoni Fraich’UP frozen pizza. 55 of these cases were children. 54 cases are related to STEC O... ...read on

French authorities still investigating frozen pizza as the cause of an outbreak of E.coli O26 & O103 strains.

25th April 2022

As of 13/04/2022, French officials have confirmed 53 cases have been identified, of which 51 are related to STEC O26 strain, and 2 to STEC O103 strain. Sadly, it is reported two children have died. At least 6 of these children have developed Haemolytic Uraemic Syndrom... ...read on

Frozen pizzas are a possible cause of a French outbreak of E.coli O26, causing a large number of Haemolytic Uraemic Syndrome (HUS) cases.

1st April 2022

Nestle in France have recalled their Buitoni brand FraichUP pizzas after authorities suspected that these pizzas may have caused an outbreak of the E.coli O26 bacterium leading to a large number of Haemolytic Uraemic Syndrome (HUS) cases. ... ...read on

FSA planning to reduce both local authority food inspections and meat hygiene inspections.

13th January 2022

The Food Standards Agency (FSA) is planning to reduce both local authority food inspections and meat hygiene inspections according to recent FSA board papers and consultations under their transformation programme, which aims to turn them into a modern regulator. ... ...read on

Response to Defra on the National Food Strategy 07-10-2021

9th November 2021

Our response to DEFRA on the National Food Strategy 07-10-2021 can be downloaded here.... ...read on