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E.coli O157 & Haemolytic Uraemic Syndrome


Give aHUSUK your online backing

28th February 2013

aHUSUK, the patient support group (for those whose HUS is not as a result of E.coli infection) would like you to support their latest online petition.  They are calling for Health Ministers to approve funding  for a National Specialised Service  and the use of Eculizumab for aHUS patients without delay.

At the moment the Health Minister wants to delay implementation of the recommendation by asking NICE to complete a duplicate assessment, thus  prolonging the wait for patients whose lives could be saved or transformed by this drug.

http://epetitions.direct.gov.uk/petitions/46252 - (No longer available)




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5th October 2014

HUSH has supported an application for a feasibility study of the drug Eculizumab, for HUS sufferers. The drug is currently being successfully used for sufferers of a similar illness called aHUS. ... ...read on
17th May 2014

HUSH has responded to the Food Standards Agency [FSA] Consultation on Raw/Unpasteurised Milk. Our response can be found in Consultations/Documents on our home page. We would like to thank all those non members who voted in favour o... ...read on
26th January 2014

HUSH has responded to the Department of Environment's Farming and Rural Affairs [Defra] call for evidence on Agriculture. This document can be found in the Consultation/Report Documents section on this website, on the left hand side. ... ...read on
9th December 2013

The Herald newspaper in Scotland reported in an article on Friday 6th December 2013 edition that two children both under 5 years old, had become infected with the bacterium E.coli 0157. One child was receiving hosiptal treatme... ...read on
20th October 2013

HUSH has submitted the following consultation responses, to the FSA's review of Power of Entry 11-10-2013 to the FSA's Consultation on THE FOOD SAFETY AND HYGIENE (ENGLAND) REGULATIONS 2013 - 13-10-2013. These can be found by click... ...read on
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