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E.coli O157 & Haemolytic Uraemic Syndrome


Give aHUSUK your online backing

28th February 2013

aHUSUK, the patient support group (for those whose HUS is not as a result of E.coli infection) would like you to support their latest online petition.  They are calling for Health Ministers to approve funding  for a National Specialised Service  and the use of Eculizumab for aHUS patients without delay.

At the moment the Health Minister wants to delay implementation of the recommendation by asking NICE to complete a duplicate assessment, thus  prolonging the wait for patients whose lives could be saved or transformed by this drug.

http://epetitions.direct.gov.uk/petitions/46252 - (No longer available)




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29th March 2015

The Charity has sent the following letter to the Food Standards Agency in relation to burgers being cooked rare: Mr Steve Wearne Director of Policy ... ...read on
29th March 2015

Our colleagues at aHUS have arranged an international awareness day on 24th September 2015. This is to mark the 60th anniversary of the the term Haemolytic Uraemic Syndrome being mentioned in a Swiss publication. ... ...read on
5th October 2014

HUSH has supported an application for a feasibility study of the drug Eculizumab, for HUS sufferers. The drug is currently being successfully used for sufferers of a similar illness called aHUS. ... ...read on
17th May 2014

HUSH has responded to the Food Standards Agency [FSA] Consultation on Raw/Unpasteurised Milk. Our response can be found in Consultations/Documents on our home page. We would like to thank all those non members who voted in favour o... ...read on
26th January 2014

HUSH has responded to the Department of Environment's Farming and Rural Affairs [Defra] call for evidence on Agriculture. This document can be found in the Consultation/Report Documents section on this website, on the left hand side. ... ...read on
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