Who are we?
We are a family who sadly lost their 6-year-old Daughter Joanna in 1994 from Haemolytic Uraemic Syndrome (A condition that affects the blood and blood vessels, that can lead to Kidney failure) caused by the bacterium E.coli O157. (Sometimes E.coli O157 is referred to as VTEC or STEC)
Since 1996 when we found out exactly what caused our daughter's death, we have been campaigning to prevent more people suffering from E.coli O157, which can be found in food and the Environment.
In our time we have engaged with Government Departments such as The Food Standards Agency (FSA), the Department of Health and Social Care (DHSC), formally known as the Department of Health (DH) and Department of the Environment Food and Rural affairs (Defra) formally known as The Ministry of Agriculture Food and Fisheries (MAFF).
We were also co-applicants along with medical professionals on a drugs trial for STEC caused Haemolytic Uraemic Syndrome, whose aim was to see if it could reduce the worst effects of this illness. This was sadly cancelled in 2020 by the National Institute for Health Research (NIHR) partly due to the Covid-19 pandemic.
As we have not taken any money from businesses etc and do this on a voluntary basis only, we are free to give a truly independent opinion to Government etc, on what we believe they are doing in relation to this bacterium, even if it is critical, which it often is.
We also contribute on other foodborne illnesses and Environmental issues, if and where required.