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E.coli O157 & Haemolytic Uraemic Syndrome



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Testimonies


Lisa Bray
16th November 2005

My daughter Caitlin was diagnosed with E.coli O157 then developed HUS. She was on 24 hour dialysis for 2 weeks at Bristol Children's Hospital but remained quite poorly for some time with different complications such as a bowel obstruction and not draining enough from dialysis. 

Whilst there I started showing the first signs of illness and had to leave my gravely ill daughter and return home. I was admited to hospital the following day with dehydration and for pain relief. I was started on antibiotics immediately I did question this and was told it made me less infectious?  Two days later I was showing signs of HUS and had to be transferred to Cardiff Renal Unit. During all this time my little boy, who was staying with his grandparents, also had E.coli and was hospitalised for 2 days but luckily had no other problems.

Once Caitlin started to recover she picked up really quickly and within 2 weeks was only on dialysis during the night. At 3 weeks she was off the dialysis and passing urine again. At the moment her bloods are not back to normal but she is progressing well. Her blood pressure is the high side of normal but she doesn't need to take ace inhibitors.
 
I am also progressing well. I was going to be treated with plasma exchange but started showing signs of fighting the disease, so I only had fluids and 5 units of blood. 
 

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16th November 2005

My daughter Caitlin was diagnosed with E.coli O157 then developed HUS. She was on 24 hour dialysis for 2 weeks at Bristol Children's Hospital but remained quite poorly for some time with diffe.... read
14th October 2005

My son, who was two and a half at the time, caught E.coli from some  unpasteurised cheese that I had bought from a cheese stall, not kno.... read
16th March 2005

Like many people I first heard of E.coli O157 when an outbreak in Wishaw (central Scotland) during 1996 claimed the lives of 20 elderly people - my friend's two grandparents included. However, once.... read
16th March 2005

My daughter contracted E.coli O157 following a weekend away in the country during November 1994 - she was four and a half years old. Over the weekend she developed diarrhoea, which became p.... read
9th November 2004

I contacted HUSH in 2002 when I realised that my daughter had a life-threatening disease, and I had no-one turn to. Suddenly there was a life-line. I was in contact with people who had been through.... read
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